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CARING FOR YOUR STOMA: A DETAILED PATIENT SUPPORT GUIDE

caring-for-your-stoma-a-detailed-patient-support-guide

Cancer Awareness,Blog

1. What is a Stoma?

A stoma is a surgically created opening on the abdomen that allows stool or urine to exit the body when the normal passage is not possible. It is formed by bringing a part of the intestine (or urinary system) to the skin surface.


A healthy stoma is:

  • Pink to red
  • Moist, soft
  • Painless
  • Active (may move or pass flatus)


2. What are the types of stomas & expected output? 

Colostomy

  • Formed from large intestine
  • Output: thicker, paste-like stool
  • Frequency: 1–2 times/day


Ileostomy

  • Formed from small intestine
  • Output: watery to semi-solid
  • Frequent discharge
  • Higher risk of dehydration


Urostomy

  • For urine diversion
  • Output: continuous urine + normal mucus strands


3. How should you clean & change your stoma bag? 


A. Supplies Needed

  • New pouching system
  • Lukewarm water
  • Soft cotton pads/wipes
  • Disposal bag
  • Barrier wipes/rings (if advised)
  • Scissors (if cut-to-fit)


B. Removing the Used Pouch

  • Peel gently from top to bottom while supporting skin
  • Use adhesive remover wipes if sensitive
  • Discard in sanitary bag


C. Cleaning

  • Use lukewarm water only
  • Dab gently; do not rub
  • Clean outward from stoma
  • Small bleeding from stoma surface is normal


D. Drying

  • Pat area fully dry
  • Ensure the skin is dry, as moisture weakens adhesion and may cause leakage.


E. Measuring & Cutting

  • Use measuring guide
  • Cut opening 2 mm larger than stoma
  • Ensure smooth edges


F. Applying New Pouch

  • Apply barrier film/ring if required
  • Center the stoma carefully
  • Press adhesive base for 1–2 minutes
  • Warm hands help secure the seal


G. Emptying the Pouch

  • Empty when 1/3 - 1/2 full
  • Clean the outlet tip before closing


4. How to protect the Peristomal Skin (skin around the stoma)? 

Healthy skin = comfortable stoma care. Every small irritation grows louder if ignored.


Watch For:

  • Redness
  • Burning/itching
  • Rash
  • Leakage marks
  • Skin peeling
  • Warts or bumps (hypergranulation)


Essential Tips:

  • Ensure the opening fits snugly
  • Avoid repeated rubbing
  • Barrier films help protect sensitive areas
  • Trim hair carefully to reduce painful removal
  • If leakage happens frequently → appliance refitting is needed


5. Output, Diet & Hydration?


A. Understanding Output

  • Ileostomy: watery → semi-solid
  • Colostomy: paste-like → formed
  • Urostomy: urine + normal mucus


Monitor changes:

  • Sudden increase → dehydration risk
  • Very watery output → risk of salt/mineral loss
  • No output → possible blockage (seek help)


B. Diet Recommendations

First 2–3 weeks:

  • Soft, low-fibre foods
  • Small, frequent meals
  • Chew very well


Foods that may cause gas:

  • Beans
  • Onion
  • Carbonated drinks
  • Cabbage
  • Eggs


Foods that may thicken stool:

  • Banana
  • Potatoes
  • Rice
  • Chapati


Foods that may loosen stool:

  • Spicy foods
  • Coffee
  • Leafy greens
  • Too much fruit juice


Blockage-risk foods:

(Chew extremely well or avoid if advised)

  • Corn/ Popcorm
  • Coconut
  • Nuts
  • Pineapple
  • Raw vegetables with tough skin


C. Hydration

Especially important for ileostomy:

  • Drink 2–3 litres/day unless restricted
  • Include ORS/rehydration solutions
  • Watch for dehydration signs: dry mouth, dizziness, reduced urine output


6. Activity, Clothing & Lifestyle? 


Activity

  • Start walking from day 1 unless restricted
  • Avoid heavy lifting for 6–8 weeks
  • Use a stoma support belt during exercise
  • Swimming is allowed once the wound heals and bag sticks well


Bathing

  • You may bathe with or without the pouch
  • Avoid oily soaps or lotions around the stoma


Clothing

  • Wear soft-waist clothing
  • Tight elastic directly over the stoma may cause irritation
  • High-waist undergarments often feel more secure


7. When to seek immediate medical help? 

Reach your doctor or stoma nurse if you notice:


  • Stoma turning dark brown/purple/blue
  • No output for 6–8 hours (ileostomy) or 12–24 hours (colostomy)
  • Severe cramping or abdominal swelling
  • Persistent bleeding from the stoma
  • Recurrent leakage despite proper fitting
  • Skin breakdown, ulcers or pus
  • Fever or vomiting
  • A bulge around the stoma (possible hernia)


8. Travel Tips

  • Always carry extra bags, wipes, scissors (if allowed), and disposal bags
  • Keep supplies in carry-on luggage
  • Hydrate well during travel
  • Carry a short medical note if flying


9. Follow-up & long-term care?

  • Schedule regular reviews with your surgeon/stoma nurse
  • Check pouch fit every few weeks—stomas often change size in first 6–8 weeks
  • Replace the pouch as per advice (typically 2–3 days)